Biographies
We’ve brought together the top thought leaders and experts in healthcare to help you on your Advocacy journey. Learn more about them, their experience, and achievements.
Agnes Nsofwa
Agnes Nsofwa is a registered nurse, sickle cell advocate, author, book publisher, and advocacy consultant. Agnes is the creator of different initiatives to enhance sickle cell awareness around the world. Her world changed when her daughter was diagnosed with sickle cell anaemia in 2009, starting with changing her career from the Business world to becoming …
Ann Single
Ann Single is the Coordinator and a Steering Committee Member of the Patient Voice Initiative (Australia) and internationally chairs the Health Technology Assessment international (HTAi) Patient and Citizen Involvement Interest Group whose 400 multi-stakeholder members are committed to improving patient involvement in access and reimbursement decisions. Her experience includes leading the development of patient involvement …
Ann-Maree Mulders
Ann-Maree is an ovarian cancer survivor. The young, married mother of two sons had visited doctors with symptoms that could have gone undiagnosed: constant bloating and occasional abdominal pain. Her persistence to advocate for her own health lead to doctors removing an 11cm tumour that was in her ovary. Ann-Maree now advocates for others as …
Bree Mountain
Bi+ Visibility was founded in October 2018 in response to the significant mental health concerns found within the bisexual+ community. Research has found that one of the main contributing factors of the alarming mental health statistics is the isolation and exclusion the bisexual+ community experience. Bi+ Visibility aims to address the feelings of isolation and exclusion …
Cassandra Kelly
Cassandra is a highly regarded leader and continues to enjoy a global career advising, operating businesses and leading teams. She is a private coach to influential leaders, both corporate and political. Outside of working with large multinationals and advising on panels like the Global Tech Panel, she has her own experience as an entrepreneur as …
Doug Hawkins
Doug specializes in the design and delivery of business transformation programs designed to commercialize innovation and accelerate growth. Doug is leading Pancare’s current transformation program to scale its patient and carer services nationally and increase funding to support Pancare’s research investment in line with the charity’s strategic objectives. Doug is a graduate of several world-class …
Dr Simon Fifer
Dr Simon Fifer is a founding partner of CaPPRe and Director of Research and Innovation. He is a specialist in studying human decision making using choice based measurement. Prior to starting CaPPRe, Simon was core member of the Centre for the Study of Choice (CenSoC, UTS) and the Institute for Choice (I4C, UniSA). Simon manages …
Dr Tim Sharp
An internationally renowned leader in the fields of Positive Psychology and mental health, Dr. Sharp is a sought-after Consultant and Mentor, Speaker, Writer, and Spokesperson. Dr. Sharp has three degrees in psychology (including a Ph.D.) and an impressive record as an academic, clinician, and coach. He previously set up and ran one of Sydney’s most …
Elizabeth Andrew
Elizabeth has worked at Pancare Foundation since 2018, starting as Marketing and Communications Manager, and also working in the roles of Head of Fundraising and, currently, as Head of Government Relations and Advocacy. Elizabeth’s skills and experience include the development and implementation of integrated end-to-end marketing campaigns, strategic marketing development, brand management and development, and …
Genevieve Dugard
Genevieve Dugard is the National Creative Producer at Big hART – Australia’s leading arts and social change organisation. Big hART works nationally, collaborating and creating high quality content with vulnerable communities and individuals, that highlights injustice and shares hidden stories of strength. Genevieve is an experienced practitioner with over 20 years working in community and …
Hugo Toovey
Hugo Toovey is the founder of 25StayAlive. In 2013, Hugo’s life drastically changed when he was diagnosed with testicular cancer. As well as fighting (and beating) testicular cancer, Hugo was also diagnosed with bowel cancer in 2018. If it wasn’t for early detection, Hugo’s chance of survival would have been very different. Hugo has a …
Jessica Bean
Jessica Bean is a medicine access advocate, international speaker, consultant and empowerment coach for young women living with chronic illness. Jessica was born with cystic fibrosis, an inherited disease that damages the lungs, digestive tract and other organs. At 21, Jessica was told she would need a double lung transplant to survive but she fought …
Jimmy Niggles
Jimmy Niggles – real name Scott Maggs – grew his beard for 11 years for his charity Beard Season. In 2021, Jimmy finally shaved it all after the charity reached $1million in funding, in a bid to eradicate skin cancer. Jimmy has been encouraging everyone to get their skin checked after the passing of his …
John Crothers
John recently completed a 28 year career with Abbott, a diverse multinational healthcare company based out of Chicago, IL, USA. Over the last 13 years, John was the Regional Director of Australia & New Zealand for the Diagnostics business and the Abbott Management Representative and Director for the Abbott Affiliate in Australia and New Zealand. …
Kerry Chikarovski
Proudly the first woman to lead a major political party in New South Wales, Kerry Chikarovski. Kerry is a former politician and leader of the New South Wales Liberal Party from 1999-2002. In 2003 Kerry founded the government relations firm, Chikarovski & Associates. Working with organisations, not-for-profits, and industry associations, to help them understand the …
Kevin Barrow
Kevin has more than 20 years of experience in the healthcare industry. Most recently, as Country Manager for Philips Australia and New Zealand, Kevin oversaw all Philips’ businesses and its supporting operations across Australia and New Zealand. He was also the direct General Manager for Healthcare where he was responsible for strengthening Philips’ market positions …
Kirsten Pilatti
Kirsten has an exceptional understanding of the cancer sector having spent over a decade at BCNA and five years at Cancer Council Victoria where she was responsible for delivering communications and campaigns around prevention messages. Kristen is highly regarded for her passion and focus on Australian women and men who have been affected by breast …
Krystal Barter
Krystal Barter is a true purpose-driven entrepreneur with over 20 years of experience in advocacy and not-for-profit. Krystal is fearless when it comes to driving transformational change in the healthcare landscape. Krystal’s story and purpose were born out of the sheer determination to break the cycle of cancer that has plagued her family for generations …
Lillian Leigh
Lillian Leigh has over 20 years of combined experience advocating for consumer rights in the financial services sector as a social justice lawyer, and in the health sector as a person living with cancer. She is serving her second term on Cancer Australia’s Advisory Council, and is a joint-member of NHMRC’s Australian Human Ethics Committee …
Lindsay Melbourne
21.11.1981 – 28.04.2023 Lindsay Melbourne was diagnosed with pancreas Neuroendocrine Tumours (NETs) in August 2020. Lindsay was a passionate advocate who dedicated much of her time following her diagnosis to help raise awareness of NETs and to advocate on behalf of others, as an ambassador for Neuroendocrine Cancer Australia. We are so grateful to Lindsay …
Maddie King
At the age of 19, Maddie King went from being a dancer to being diagnosed with stage 4 Hodgkins Lymphoma. Throughout treatment, remission, and to this day Maddie bravely shares her story online, advocating for others facing the same diagnosis. Maddie is one of roughly 600 Australians diagnosed with Hodgkin’s lymphoma every year, Maddie’s story …
Mark Brooke
Mark Brooke has over 25 years of executive experience leading a diverse range of organisations in the not-for-profit and for-purpose sectors, including inaugural CEO of HeartKids Limited, CEO of Asthma Australia, CEO of Playgroup Queensland, and leadership roles at Police Citizens Youth Clubs in both Queensland and New South Wales. He is focused on leading …
Neil Pharaoh
Neil is a founding Director of Tanck, and a government engagement and campaigning guru with a depth of experience in social purpose, government, public policy, and advocacy. Having led corporate affairs, business development and marketing teams, he has been the driving force behind leading social policy and advocacy campaigns, as well as national and international …
Paul Ronalds
Paul leads Save the Children Global Ventures, the new in-house team at Save the Children responsible for taking innovative finance and new technologies to scale. He brings a unique mix of private sector, government and NGO experience to this initiative. He started his career as a corporate lawyer with international law firm Herbert Smith Freehills …
Professor Jeff Dunn AO
Jeff Dunn is the Chief of Mission and Head of Research at the Prostate Cancer Foundation of Australia. Jeff is also Professor Social and Behavioural Science and Chair Cancer Survivorship at the University of Southern Queensland and is a Board Member and Chair of the Audit and Risk Committee for the West Moreton Hospital and …
Rae Sturm
Rae is a Senior Digital & eCommerce Manager from Sydney, who has worked in digital media roles in both the commercial and not-for-profit sectors. https://www.linkedin.com/in/raesturm
Richard Vines
In 2012 Richard and his wife Kate established Rare Cancers Australia, a patient advocacy group whose mission is to improve the lives and outcomes for rare cancer patients. Richard is a highly sought-after spokesperson for cancer patient advocacy issues. https://www.linkedin.com/in/richard-vines-4708779/
Shayne Higson
Shayne Higson is a photographic artist who usually expresses her opinions through her visual art. However, following the death of her mother from brain cancer in 2012, she became a passionate and vocal supporter of dying with dignity law reform. In the 2013 Federal election Shayne ran as the lead NSW Senate candidate for the …
Shelly Horton
Shelly Horton is a TV journalist, sought after MC, Women’s Health Advocate and runs her own company ShellShocked Media where she teaches media and presenting training. She appears weekly on Channel Nine delivering opinion segments and is the lifestyle presenter for 9Honey, She has been a long time advocate for women’s health including publicly speaking …
Simone Landes
Simone Landes has over twenty-five years of experience in talent management across diverse industry groups. Her business, The Lifestyle Suite (TLS) represents Australia’s best known media doctors, health practitioners, lifestyle educators and experts, and elite athletes. The team at TLS are specialists in working with talent to build their profile and media presence via a …
Simone Leyden
Simone Leyden co-founded NeuroEndocrine Cancer Australia in 2009 after seeing a huge disparity in treatment and support for less common cancers, compared to more common cancers throughout her sister Kate’s neuroendocrine cancer journey. In 2011 Simone took on the full-time role of Chief Executive Officer of NeuroEndocrine Cancer Australia, which set up her quest for …
Tracy Bevan
Tracy Bevan made a promise to her best friend Jane before she passed that she would continue what they started at the McGrath Foundation. Tracey is an Ambassador and Director of the McGrath Foundation; she works closely with members of the community and often speaks at events to raise awareness about the vital role McGrath …
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